10/10/2009

Update on baby Jenna

I wanted to thank everyone that is praying for baby Jenna since I mention the prayer request last thrusday. I am sure the parents can feel the prayers of God´s people, and will be thankful if you would continue to do so.

I have been following then through facebook and the doctors found the problem on thursday. The diagnosis is HLH. I must admit I have never heard about this illness, but went to http://www.histio.org/ to try to read some about it.

Histiocytosis is a rare blood disease that is caused by an excess of white blood cells. They call this disease the orphan because there are so few cases of it, that it doesn´t generate enough "noise" to get govertment attention to do research. It can attack the skin, bones, lung, liver, spleen, gums, ears, eyes, and/or the central nervous system, and it is treated like cancer, although is not.

Baby Jenna started chemo and will be having treatments of chemo for 8 weeks. Then, her mom said that will probably then be having a bone marrow transplant.

The answer prayer was that they did an MRI to see if the HLH had affect the brain, and the results came back with no evidende of brain involvement.

Please continue to have baby Jenna and her parents in your prayers. I will keep you posted as I hear something.


5 comments:

Becka said...

Thanks for the update,
I have been praying & will keep doing so,

Alicia said...

Thank you for that update, Pilar! We will continue to pray for Jenna!!

Denise said...

Thanks for updating us, prayers continue.

Stuff could always be worse said...

Yes thanks for the update and will continue to pray.
kim

Mich said...

Praying for this little one...